MS某些症狀對應到靜脈窄化的證明

還記得之前文章提到的病友Luck lady嗎？

又一位國外的MS病友手術後的經驗分享

另一位國外的MS病友在執行靜脈擴張手術後的經驗分享

看看她的病史(從2000年就試過不同的藥物)
4 年 Avonex, (干擾素1a)
2 年 Rebif, LOTS of 'roids, 干擾素
3 年 Tysibri
6個月, Zenapax.
在今年3/3/10做了靜脈擴張術Liberation ,
在今年7/30/10 再度做了靜脈擴張術ReLiberation

這是她第2次做完的感覺：只有一個字：GREAT!
來看看她第2次的結果：

So how am I feeling just under 48 hours afterwards? In a word: Great! I had so many benefits from the first procedure, the results have been less dramatic, but no less wonderful the second time around.

1. My feet are still pink, although they are warmer than they were before. They had slowly gotten colder over these last 5 months I now realize in hindsight.
(由此可知5個月當中靜脈會再度漸漸的窄化)

2. My swallowing is back to excellent. It improved dramatically post procedure #1. It has gotten noticeably worse over the past month, although it still never got close to as bad as before #1. 吞嚥再度變好

3. Cognitive never really declined as far as my husband and I can tell. I continue to enjoy clear thinking. 認知能力變好，思緒相當清楚

4. Fatigue did get worse over these months. Never near the levels before treatment #1, but I still faded earlier in the evenings than just after the first treatment. I was up watching movies with my man until after 11:00 the past two nights. That's solid evidence I'd say.
(疲勞的感覺在第一次手術後數月的確有變壞，第一次手術後我直到傍晚才會覺得疲累，第2次手術後兩天，我的精神好到能夠和我先生看電影看到晚上11:00都沒問題。)

5. I can get out of a chair very easily! Over these months I have begun to struggle mightily to push up or grab onto something to haul myself to standing.
我可以輕鬆的從椅子上站起來，第2次手術前我還必須抓著東西來幫助我站起來！

6. My balance is significantly better. My legs are still very weak, but I can walk without the cane in the house with increasingly greater confidence.
平衡變得更好了！雖然我的腳依舊弱，但是我不用拐杖就能夠在屋子內行走


7. I can lift my legs higher. When I got into bed last night I laid down with my feet on the ground and lifted them one at a time high off the floor and rested them on the bed. Three days ago I had to drag them onto the bed with my hands.
我可以把腳抬得更高了。

8. I walked up and down a flight of stairs today. Because of the weak legs it is still not pretty, but coming up is much easier now that I can lift my legs more easily.
能夠上下一連串的階梯了
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她是我從網路上找到做了2次氣球擴張手術的MS病友 (目前有做到兩次擴張的經驗者不多)
我們可以知道幾件事情：

1. 靜脈是會再度狹窄的，而靜脈的再度狹窄會導致某些症狀的再出現，所以：證明了關聯的症狀和靜脈狹窄的連結關係

2. 和靜脈狹窄的相關連的症狀至少有：a,疲累, b,下肢的顏色和溫度, c,吞嚥能力, d,認知能力, e, 平衡能力, f,下肢的力氣恢復 (我的經驗中就有了兩項)

3. 靜脈要如何才能不讓她再度輕易的窄化回來呢？ 非得用支架才行嗎？-->這真的是傷腦筋的問題...

因為手術在同一個病人身上重複了兩次，前後的對照，就可以初步結論。實驗的 再現性 就是相當有利的證明。

I had the pleasure of attending a symposium on CCSVI in Brooklyn, NY on July 26th. The auditorium was filled with Interventional Radiologists, a few, a vascular surgeon or two, and about 30+ CCSVI patients who also have MS-like symptoms.
她在7/26參加了在紐約布魯克林所舉辦的CCSVI 研討會：
該研討會有來自 放射醫師; 神經醫學醫師; 靜脈手術醫師; 還有超過30位具有CCSVI的病人(這些病人也有著MS的症狀)

MS某些症狀對應到靜脈窄化的證明