- Link: Clinical Trial Testing New Multiple Sclerosis Treatment to Launch in Buffalo
- Link: From M.S. Patients, Outcry for Unproved Treatment - NYTimes.com
- Link: Over $2.4 Million Committed to Support 7 Initial CCSVI Grants
- Link: Chronic Cerebrospinal Venous Insufficiency (CCSVI) : National MS Society
- Link: MS patient describes life after Liberation Treatment - CTV News
- Link: MS patients: Denial of treatment discrimination
- Link: Not available in Canada - Health - Macleans.ca
- Link: Kuwait - Chronic Cerebrospinal Venous Insufficiency Study
- Link: Senator David Angus addresses Canadian Senate regarding CCSVI on April 27, 2010
- Link: Senator David Angus addresses Canadian Senate regarding CCSVI on April 28, 2010
- Link: Networking power of the web shifting power balance between docs and patients
- Link: Is CCSVI (jugular stenosis) the cause of Multiple Sclerosis ...
- Link: Wheelchair Kamikaze: Well, I'm Going for It - Having CCSVI Procedure This Wednesday
- Link: KVMR Radio Interview with an MS Patient/Advocate Mark
- Link: New MS research - CBC News - Connect with Mark Kelley
Posted: 01 Jul 2010 06:20 PM PDTResearchers at the University at Buffalo, led by the Department of Neurosurgery, will embark on a landmark prospective randomized double-blinded study to test the safety and efficacy of interventional endovascular therapy—dubbed “liberation treatment”—on MS symptoms and progression. More links at http://Liberation-Treatment.
Posted: 30 Jun 2010 06:31 PM PDTFor her first appointment with Dr. Daniel Simon, Neelima Raval showed up with a rolling file cabinet full of documents. She had downloaded every word written by or about Dr. Paolo Zamboni, a vascular surgeon from Italy with a most unorthodox theory about multiple sclerosis.
Dr. Zamboni believes that the disease, which damages the nervous system, may be caused by narrowed veins in the neck and chest that block the drainage of blood from the brain. He has reported in medical journals that opening those veins with the kind of balloons used to treat blocked heart arteries—an experimental treatment he calls the “liberation procedure”— can relieve symptoms. More links at http://Liberation-Treatment.
Posted: 12 Jun 2010 07:08 PM PDTOver $2.4 million has been committed by the National MS Society (USA) and the MS Society of Canada to support 7 new research projects focusing on the role of CCSVI (chronic cerebrospinal venous insufficiency) in MS.
All research applications underwent a rigorous expedited review process by an international review panel that included experts drawn from all key relevant disciplines including radiology, vascular surgery and neurology. The U.S. National MS Society and the MS Society of Canada worked collaboratively to assemble the reviewers who considered scientific merit, responsiveness to the Request for Applications, experimental design, likelihood of producing definitive data, and the experience of the applicant teams in making their recommendations. More links at http://Liberation-Treatment.
Posted: 12 Jun 2010 07:07 PM PDTRecent preliminary studies have suggested that a phenomenon called Chronic Cerebrospinal Venous Insufficiency (CCSVI), a reported abnormality in blood drainage from the brain and spinal cord, may contribute to nervous system damage in MS. This hypothesis has been put forth by Dr. Paolo Zamboni from the University of Ferrara in Italy. Based on the results of his initial preliminary findings published in June 2009 from a study of approximately 65 patients, Dr. Zamboni and colleagues who have begun investigating CCSVI state that this pilot study warrants a subsequent larger and better controlled study to definitively evaluate the possible impact of CCSVI on the disease process in MS. Further studies are also taking place at centers including University at Buffalo Medical Center and the Center for Vascular Awareness in Albany, NY. More links at http://Liberation-Treatment.
Posted: 12 Jun 2010 03:38 AM PDTOne of those patients was Steve Garvie. Garvie had been diagnosed with secondary progressive MS, the most severe type of the disease. After his neurologist told him to wait for more studies on Zamboni's research, Garvie went instead to see vascular surgeon Dr. Sandy McDonald, who runs an imaging clinic in Barrie, Ont.
A scan of Garvie's neck revealed he had abnormal blood drainage from his brain because of a narrowed left jugular vein. Dr. McDonald and his colleagues unblocked the vein with a small balloon in a procedure called a venoplasty. Now, two months later, Garvie provides this account of how the procedure has changed his life: More links at http://Liberation-Treatment.
Posted: 08 Jun 2010 08:54 PM PDTMultiple sclerosis patients in at least two provinces are preparing to launch human rights complaints as they demand access to an unproven treatment that has excited the hopes of people living with the degenerative disease and already prompted some to seek the procedure abroad.
A group of patients in British Columbia and another man with the disease in Newfoundland say denying them treatment for a vein condition that’s been called chronic cerebrospinal venous insufficiency, or CCSVI, amounts to discrimination. More links at http://Liberation-Treatment.
Posted: 01 Jun 2010 05:55 PM PDTLike tens of thousands of Canadians afflicted with multiple sclerosis, Rebecca Cooney greeted Paulo Zamboni’s much-publicized research late last year with excitement. Zamboni, an Italian professor of medicine and a former vascular surgeon, brought a fresh lens to a disease long diagnosed as an incurable neurological condition: he found that all 65 MS patients in his study had stenoses, or blockages, in veins in their neck or thorax, a condition he dubbed chronic cerebro-spinal venous insufficiency, or CCSVI. After their blockages were cleared with a basic venous angioplasty, many found their symptoms improved; others saw the degenerative disease’s progress halt altogether. Zamboni’s ﬁndings were hailed as a potential breakthrough in MS research, a field focused on drug trials. Proof that the disease had a vascular component, a theory bandied for a century, was viewed as a potential game-changer offering rare hope for MS patients. More links at http://Liberation-Treatment.
Posted: 02 May 2010 07:51 PM PDTKuwait will commence their country wide study of MS and CCSVI on May 4, 2010.
Includes a brief summary of result from other studies including Zamboni and Buffalo.
Currently only open to Kuwait Nationals but looks to have a registration page for foreigners at:
register.aspxMore links at http://Liberation-Treatment. com/Links
Posted: 29 Apr 2010 06:26 PM PDTSenator David Angus and his Senior Policy advisor, informed of new developments regarding CCSVI and MS, made a compassionate plea on the floor of the Senate on the behalf of Canadian MS patients. More links at http://Liberation-Treatment.
Posted: 29 Apr 2010 06:10 PM PDT
Posted: 28 Apr 2010 03:48 AM PDTRebecca Cooney may have a debilitating, degenerative disease, but that doesn't mean she's ready to automatically defer to the authority of the medical community. More links at http://Liberation-Treatment.
Posted: 28 Apr 2010 02:21 AM PDTOne MS patients recording of her progress after having been treated for CCSVI. More links at http://Liberation-Treatment.
Posted: 09 Mar 2010 01:04 PM PSTBlog post from an MS patient who is getting treated for CCSVI on March 10, 2010. Includes an account about what the procedure will entail as well as where it is being performed. More links at http://Liberation-Treatment.
Posted: 11 Feb 2010 07:55 PM PSTApprox 50min long (split across 5 YouTube Videos)
Excellent overview of the history of Zamboni's CCSVI theory to date, including information on Buffalo Study.
Hint: Click Play All Videos More links at http://Liberation-Treatment.
Posted: 11 Feb 2010 07:27 PM PSTCBC News coverage of CCSVI treatment of MS.
Includes some quotes from Zamboni, the Buffalo clinical trial and some good quotes about what it's like to have MS.
Representative from Canada MS Society presents their point of view - hopeful but still sceptical. More links at http://Liberation-Treatment.