7個月了-7 months after Liberation treatment

在榮總完成靜脈擴張術後7個月

我的情況～ 可向前跑60公尺

Let's keep Moving!
Jimmy Jogger

7個月了-7 months after Liberation treatment

CCSVI和MS一些研究結果

美國水牛城大學對CCSVI和MS一些研究結果

過去認為HLA DRB1*1501 此一基因和 MS 有關.該研究者目的為找出是否CCSVI和此一基因是否有關連

相關論文全文可見：Chronic Cerebrospinal Vascular Insufficiency Is Not Associated with HLA DRB1*1501 Status in Multiple Sclerosis Patients

CCSVI和MS一些研究結果

每個人都要珍惜和家人在一起的時刻

想想之前從畢業之後離家遠赴他鄉至第3次嚴重發病前已有5-6年的時間，在前段的時間中，所追求的算是立業吧，而在年紀稍長，且可望安定之後較後段的時間內則是成家。

對於一個人一生所追求和經歷的的不過是成家，立業，生兒育女，而後完成了一段生命和人生的目的。對於一個離家的年輕遊子，最簡單不過的夢想也就是有些成就，然後創造一個家庭，並且進入下一個階段的家庭生活。

成家算是對家庭生活的一種希望，也算一種責任。在發病後，生活也從單身一個人回復到了家庭的生活，和父母親再次的緊密生活在一起。這段時間，自己也覺得在所謂的家庭生活的希求無形當中獲得了相當的滿足，未必一定要有另外一個家庭啊。所希望的不就是家庭生活的感覺嗎？

能夠和自己的家人在一起生活就是家庭生活了。又何必遠赴其他地方追尋？所以請珍惜和家人在一起的時刻，那怕是鬥嘴爭吵，或者是嘻笑怒罵，這不就是生活的一部分嗎？這場病給了我一些不同的角度和觀點來審視自己，也謝謝上天給了我這樣的禮物。

正所謂：父母在，不遠遊。雖然有點不適用於現代的資訊科技時代，年輕人多半遠赴異地工作，許久才能夠回老家看看老父老母。但是若有機會的話，還是回家看看吧。回家是每個人都渴望的。而我現在正在享受這份幸福！也希望正在看這篇文章的你或妳能能夠隨時珍惜並且享受這份家庭生活的幸福感。

每個人都要珍惜和家人在一起的時刻

生命價值

一個很棒的團體, 很棒的組織者，和很棒的團員.

生命價值

平凡

看到以前的自己 Selina痛哭：想當平凡人

大家都認為Selina是勇敢堅強的女孩，但Selina情緒崩潰了，昨天Selina看到自己以前在螢光幕的樣子，她忍不住悲從中來，說再怎麼樂觀，失去的再也找不回來，她倒在 未婚夫阿中懷裡哭泣，阿中安慰她，你還是很幸福的，而且是各很特別的人，沒想到這席話讓Selina更傷心，她說，她只想當平凡人想結婚生小孩，但阿中安慰她，上天要讓你的生命更有意義，有一天你會知道，這才讓Selina收起眼淚，繼續復健，說有一天一定會當阿中最幸福最特別的新娘。

打扮得美美的，在舞台上唱唱跳跳，這是我們看到Selina美麗開朗的樣子，但這樣的畫面卻讓Selina忍不住感慨。

Selina在微博上留言，說看到不久前螢幕上活蹦亂跳的自己，才發現不管多樂觀，我失去的再也回不來了，忍不住淚水的潰堤，倒在未婚夫阿中的懷裡，說自己原本是全世界最幸福的女人。

阿中立刻安慰她，「妳現在還是最幸福的人，而且還是個很特別的人」，但Selina哭吼，「只想當個平凡的人，結婚生小孩」，微博上的文字看人讓人鼻酸。

這一幕鼓起勇氣面對大家，背後是多少的心酸跟痛苦。面對鏡頭總是低調不語，阿中默默的在背後支持Selina，只有他才看到Selina無助脆弱的樣子。

阿中還告訴Selina是老天要讓你的生命更有意義，這一席話才讓Selina收起眼淚，繼續展開痛苦的復健行程，最後還說「會努力的當你最幸福最特別的新娘」。

經歷生死劫難，Selina渴望平凡生活，一路走來更見Selina跟阿中堅定不移的愛情，Selina的真實人生，比她在舞台上的演出更讓人感動。

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想當平凡人! 我深有同感。通常都是在經歷巨變之後的感想。

當身體都是健康自由的時候，人往往都不會這麼想。

只有平凡才是真正的幸福，但是人永遠都不會滿足現狀的！

總是要經歷過才會大徹悟。知足才能常樂，知足才會幸福。

無論平凡與否都繼續的往前走吧! Let's keep walking!

更多閱讀:
當代物理學家大師史蒂芬·霍金的感觸
MS人一定要注意的事
心情點播: 我們就是這個世界
網路讀書會之三: 賣命工作的誘惑-新經濟的矛盾與選擇5
由文英阿姨看現代人所需要面臨的課題
心情點播:心中仍然有一份對伴侶的希望之火
如果你的人生可以重來～
一句話道盡人生

平凡

北美對於CCSVI的研究情形update

在去年北美洲(加拿大和美國) 7大研究群於2010/7/1正式啟動的CCSVI研究 發布前6個月的研究進度

The National Multiple Sclerosis Society and the MS Society of Canada have just released their report on the first 6 months of progress on the seven CCSVI studies with a more than $ 2.4 million.
該7個研究團隊被資助超過了240萬美元, 2年的時間對於CCSVI和MS相關連的研究. 該進步報告包含團隊成員的建立, 設定實驗的流程, 參與病人的召募, 等等.

Details: The funded investigators, which include an integration of both MS and vascular experts, report progress in establishing their teams, putting their protocols in place, recruiting participants and beginning their studies, as summarized below.

該7個研究團隊前6個月的研究進度如下:

• Dr. Brenda Banwell, The Hospital for Sick Children, Toronto, Ontario: Her team received Research Ethics Board approval in the fall and has begun enrolling participants and studying vein abnormalities in children and teenagers who have MS, and healthy controls of the same age, using non-invasive MRI measures of vein anatomy and novel measures of venous flow, as well as ultrasound. The team’s ultrasound experts have received training in Dr. Zamboni’s original techniques.
Read details of Dr. Banwell’s plans.

• Dr. Fiona Costello, Hotchkiss Brain Institute, University of Calgary, Calgary, Alberta: Her team received Research Ethics Board approval in the fall to begin recruiting a cross-section of people with MS compared to other neurological diseases and healthy volunteers. They also recruited two ultrasonography experts who have begun ultrasound scanning as originally used by Dr. Zamboni. Dr. Costello’s team slowed recruitment briefly to upgrade to a new 3T MRI machine (twice as strong as standard clinical MRI) that will be used to perform MR venography scans to compare against the ultrasound tests.
Read details of this team’s plans.

• Dr. Aaron Field, University of Wisconsin School of Medicine and Public Health, Madison: His team will be using MR venography and ultrasound techniques originally used by Dr. Zamboni to investigate CCSVI in people with early and later MS, controls with other conditions and healthy volunteers. A study coordinator is developing a recruitment list and an ultrasound expert has been hired and is slated to receive training in the Zamboni techniques. Dr. Field has been negotiating with the Institutional Review Board on issues related to study details and informed consent, and hopes to have these issues resolved to obtain IRB approval in the coming weeks so that scanning can begin.
Read details of this team’s plans.

• Dr. Robert Fox, Cleveland Clinic, Cleveland: His team has received Institutional Review Board approval for using MR venography, ultrasound, MRI and clinical measures in people with MS or who are at risk for MS (CIS) and comparison groups, and recruitment is ongoing. Two ultrasound researchers underwent training in the technique originally used by Dr. Zamboni, and the team has obtained a new ultrasound machine previously used in other CCSVI studies. The ultrasound team found several aspects of the published methodology ambiguous, and they have standardized the protocol and analysis to achieve consistent results. To share ideas and solutions to these methodological challenges, Dr. Fox’s team has submitted an abstract for consideration for presentation at the American Academy of Neurology’s annual meeting in April.
Read details of this team’s plans.

• Dr. Carlos Torres, The Ottawa Hospital, University of Ottawa, Ontario: His team obtained Research Ethics Board approval in the winter and at once began the first phase of scanning using MR venography in people without MS, which will be used to compare with various scans in people with MS. Dr. Torres’s team has overcome several obstacles including negotiating with the Research Ethics Board over elements of the informed consent form used to explain the study’s procedures and potential outcomes to participants. Team members are slated to be trained using the ultrasound techniques originally used by Dr. Zamboni, and they are on track recruiting more participants for the study.
Read details of this team’s plans.

• Dr. Anthony Traboulsee, UBC Hospital MS Clinic, UBC Faculty of Medicine and Dr. Katherine Knox, Saskatoon MS Clinic, University of Saskatchewan: The teams at both sites have received Research Ethics Board approval and have begun to recruit and scan participants. Their ultrasound technologists were trained by Dr. Zamboni, and they are also using catheter venography and MR venography to investigate the prevalence of CCSVI in people with MS and controls without MS. The radiologists on the teams of Drs. Traboulsee and Knox are meeting in February 2011 to ensure the consistency of their protocols across sites. The teams are on target for accrual of recruits and completion of the study.
Read details of their plans.

• Dr. Jerry Wolinsky, University of Texas Health Science Center at Houston: His team applied in advance and obtained Institutional Review Board approval in the spring, and the team’s neurosonographer has received intensive training for intracranial and extracranial ultrasound scanning techniques. The team has already scanned a significant number of participants, which includes people with different types of MS, people with other conditions, and people with no known health problems. One obstacle Dr. Wolinsky’s team is addressing is the difficulty of recruiting non-MS control subjects who don’t have a personal interest in the purpose of the trial. The team is testing whether other imaging methods can confirm the ultrasound findings, while identifying the most reliable technique to screen for CCSVI.
Read details of this team’s plans.

Going Forward: These seven teams were chosen by an international panel of experts that included specialists drawn from all key relevant disciplines including radiology, vascular surgery and neurology. The grants were selected for having the greatest potential to quickly and comprehensively determine the significance of CCSVI in the MS disease process. (Read more) The teams are now established and scanning procedures are underway at all but one of the study sites. Researchers have demonstrated a clear willingness to share technical advice and information so that projects can move forward as smoothly as possible. At this six-month milepost they are making significant progress on plans for these two-year studies.

The next update on the work of the seven grantees will be reported in six months.
下一次的研究結果將於6個月之後再行發佈

北美對於CCSVI的研究情形update