網誌文章搜尋建議

給多發性硬化症MS病友和親友的建議:
如要搜尋站內相關文章可多利用
"搜尋此網誌的文章內容"的功能,這樣就可以快速的找到你想要得資訊而不需要從第一篇開始看了.
有關CCSVI(靜脈血管窄化及手術的資訊)可在相關連結以及相關MS blog內

推薦頻道:Gimmy a break

2010年4月1日 星期四

美國將開始計畫執行對靜脈血管窄化相關研究

Rumors have been swirling around chronic cerebrospinal venous insufficiency (CCSVI) studies and treatment opportunities since news of the theory hit mainstream media in late 2009. Most recently, I have heard that new study centers have been opened up and others have closed their doors, but have found it very difficult to verify most of this information.

Here is one that is easily verifiable, as it is now posted on the Clinical Trials Database (as of March 29, 2010): Study to Evaluate Treating Chronic Cerebrospinal Venous Insufficiency (CCSVI) in Multiple Sclerosis Patients.

上述為連結, 可進一步參考.

Being run by The Vascular Group, PLLC in Albany, NY, this is an interventional trial designed to test safety and efficacy of angioplasty procedures in 500 patients found to have at least 50 percent stenosis of the extracranial central veins. Interestingly, "safety" as a primary endpoint is defined as "as the incidence of major adverse events at 30 days following the index procedure," and feasibility and efficacy are "determined by those patients that do not have more than 50 percent restenosis within the 30 day time frame."

I'll let you read the rest for yourselves by clicking on the link to the study above (which includes contact information for investigators).

The one thing that I will mention is that the inclusion and exclusion criteria are extremely broad (basically including anyone with MS older than 18 who agrees to the followup), coming down to one possible sticky moment: the person must have presence of greater than or equal to 50 percent stenosis of the extracranial veins as determined by venogram. It will be interesting to see how many people qualify for this trial, based on these criteria.

Again, this is the only trial that I could find concrete information about at this time. Please add any info about other trials that you might have to the comments section below.

PS For any Canadians who have received treatment at Hamilton's MS clinic at McMaster University Medical Centre, researchers there will be conducting a trial to determine the prevalence of CCSVI in people with MS. Again, this study will be limited to local residents (I think current/former patients only) and will not include treatment, just testing.


下篇文章預告 : 復健 和MS復發的關係之我見


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3 則留言:

  1. 今天回診,陳醫師有提到你,他說你保持的很好,還說我回復的很不好呢!!(鳴.........)
    快點告訴我秘訣啦????
    circle

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  2. 感謝您的經驗分享,謝謝啦~~circle

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  3. 秘訣仍舊是多休息, 多睡覺, 累了就睡, 不要勉強, 運動完後記得多按摩, 放鬆心情, 不要想太多...(我知道我們都有相同的特質,但是還是要改喔~)

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