另外附上一個National MS Society 在4月份集合了Dr. Zamboni,等許多醫師針對CCSVI和MS的討論,是一個值得看得影片,提供給大家。
Web forum about CCSVI and MS from April 14, 2010 from syfy on Vimeo.
本網誌設立的目的在於提供MS多發性硬化症的相關醫療資訊,並且以一過來人的身分分享自己發病過程和對抗這個罕見疾病的經驗和心路歷程. 希望我的個人經驗能夠讓同樣遭受這種疾病的人獲得身體上或者是心理上的幫助,而這將是我最大的快樂!! 我更希望這種病不要發生在正常的人身上,希望能夠藉由我的網誌來換醒更多人對於健康的重視!!
Web forum about CCSVI and MS from April 14, 2010 from syfy on Vimeo.
請大家也把自己做的檢查結果以及擴張後的結果分享出來吧
I have left IJV occluded. Doctor say ballooning is not going to work and he is waiting for stents that are appropriates.
回覆刪除So no 'liberation' now for me :(
To Racer:
回覆刪除Is it MRV result and from Dr.Hu? How about the occluded position in your LIJV, neck?
Don't be depressed. I think they are preparing further treatment. Just keep in touch with doctors. I believe soon you'll be reborn!
Thank you: I am not depressed; I have high trust in Taiwanese doctors (and people). My left IJV is >90% blocked at C1 (so pretty high I think).
回覆刪除I'll wait that Dr.Hu is calling on me; angiography may even show other defects.
Thanks :)
嗯!我也是,我相信他們是最棒的!
回覆刪除窄化部份和我很接近,也差不多是C1頸椎第一節處
這樣來說,據我所瞭解目前總共有5個MS病患 JIV頸靜脈有出現狹窄或者是血流量極少的情形,一位MS病患有AZV胸腔靜脈有異常的情形。
回覆刪除