有一個臺灣人已經做了這個檢查,但是診斷結果未定,大概醫生經驗不夠,不敢確定。這里是病人在網上的帖子: Algis M 47 Yrs. SPMS 04/1998
Lesion locations (most affected side, if known), number: ??
MS treatments: Prednisolone, Mitoxantrone (3 injections), Methotrexate since 09/2004, LDN since 02/2008. Vit.D3 started 2010/01/07 0.5g/2 days Catheterized bladder for 18 months, been solved after LDN intake. Surgery for cataracts due to steroids (Prednisolone) in 09/2007.
MS symptoms before stenosis intervention: Paralyzed waist down, right arm/hand barely moving; last limb already weakened. Incontinence, Moments of "black conscious state" (<10secs), difficulties swallowing; constantly need help (wake-up, clean, change diapers, clothing....). Spasms, stifness, clonus of the left hand (remaining functional limb). I hope to think I have no cognitive problem Rolling Eyes
Number of relapses before intervention (if applicable): EDSS before CCSVI: 8+ FSS before CCSVI intervention: N/R MSIS before CCSVI intervention: 121 (?)
Are you using Inclined Bed Therapy I.B.T? Y 1st 2009.12.27 => No signifying difference. 2nd 2010.01.07 => Blood pressure change? Cant verify. 3rd 2010.01.11 => Raised to full 16cm, no obvious changes.
Have you had a procedure for stenosis yet: Y STENOSIS PROCEDURE HISTORY
Date/location of testing&procedure: 12.03.2009 National Taiwan University Hospital Doppler Diagnosis: Pending
希望你可以找到你所要答案,期待你為我們這些病友帶來好消息了,祝福你
回覆刪除祝福你!!
回覆刪除Hi~~Jimmy
回覆刪除是蔡清標的建議嗎?
我也可以去做嗎?
dada
好想快點知道結果哦~~
回覆刪除~~ctoj~~
想要做這項檢查的病友,就看看BLOG右邊的蔡醫師聯絡方式,會有人安排做這項檢查的.這只是檢查,檢查出來之後,就會知道靜脈有無窄化現象,若有的話,要解決還需要和醫師多多討論,畢竟最後可能會需要外科手術的進行..
回覆刪除其實台灣的醫療資源(儀器設備等)算是相當精良.優秀的人也不少,一定會有治癒的一天.
有一個臺灣人已經做了這個檢查,但是診斷結果未定,大概醫生經驗不夠,不敢確定。這里是病人在網上的帖子:
回覆刪除Algis
M 47 Yrs.
SPMS 04/1998
Lesion locations (most affected side, if known), number:
??
MS treatments:
Prednisolone, Mitoxantrone (3 injections), Methotrexate since 09/2004, LDN since 02/2008.
Vit.D3 started 2010/01/07 0.5g/2 days
Catheterized bladder for 18 months, been solved after LDN intake.
Surgery for cataracts due to steroids (Prednisolone) in 09/2007.
MS symptoms before stenosis intervention:
Paralyzed waist down, right arm/hand barely moving; last limb already weakened. Incontinence, Moments of "black conscious state" (<10secs), difficulties swallowing; constantly need help (wake-up, clean, change diapers, clothing....). Spasms, stifness, clonus of the left hand (remaining functional limb).
I hope to think I have no cognitive problem Rolling Eyes
Number of relapses before intervention (if applicable):
EDSS before CCSVI: 8+
FSS before CCSVI intervention: N/R
MSIS before CCSVI intervention: 121 (?)
Are you using Inclined Bed Therapy I.B.T? Y
1st 2009.12.27 => No signifying difference.
2nd 2010.01.07 => Blood pressure change? Cant verify.
3rd 2010.01.11 => Raised to full 16cm, no obvious changes.
Have you had a procedure for stenosis yet: Y
STENOSIS PROCEDURE HISTORY
Date/location of testing&procedure:
12.03.2009 National Taiwan University Hospital
Doppler
Diagnosis: Pending
我是MS患者,打了2年REBIF了,我是蔡清標醫師的患者,他沒有叫我做這檢查耶!要具備什麼資格才能做呢?
回覆刪除嗯 看來台大醫院也有類似的檢查,而且是去年12月3號.
回覆刪除給Joy: 其實只要聯絡他或者是在門診的時候和他提,他應該就會安排了,之前有一個病友也是這樣,已經先做了呢.
我想應該不需要什麼資格,只要是MS的患者應該都行吧.
看來做這種檢查還是需要相當經驗。我在網上看見一個帖子,一個印度MS病人在印度做了檢查,但是結果是正常,他非常懷疑檢查結果。還有一個英國MS病人,他在英國檢查是正常,他不相信,去了意大利檢查,結果果然靜脈狹窄。
回覆刪除恩 剛做完, 榮總的部分只能做到頸部.. 正在等結果當中
回覆刪除jugular vein 似乎正常..但我懷疑我的胸椎部分的vein縮小... Jimmy
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