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給多發性硬化症MS病友和親友的建議:
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有關CCSVI(靜脈血管窄化及手術的資訊)可在相關連結以及相關MS blog內

推薦頻道:Gimmy a break

2010年10月4日 星期一

病友的經驗分享

病友Vanessa的經驗

CCSVI手術前-1

My sister trying to eat , major spasms in both arms , has to lock everything to take a bite.
手有嚴重的痙欒現象

CCSVI手術前-2

Showing eye twitches which gives my sister blurred vision and has trouble to read
眼球也會抽動,因此無法閱讀..

CCSVI手術前-3

My sister trying to give me a hand , takes a lot of mental strength to try and keep it still , and that makes it spasm even more.
妹連和我握手都很困難~ 無法使他的手靜下來!

CCSVI手術前-4

My sister trying to move her feet , left foot slow movements and barely able to move her toes. Right foot almost no movement at all.
右腳幾乎無法移動, 左腳移動得很緩慢...


CCSVI手術後-1

This is my sister after the treatment on 15-7-2010 , she came out of surgery allready with much improved speech , she talked all day :) we only noticed later in the day she didn't have to search for words anymore.
7-15號手術後,說話改善很多,
Everything went perfectly the jugulars on both sides were opened to 100%
before she had less than 10% on her right side and less than 50% on her left.
first things we noticed right after surgery were , warm hands , and warmer feet , and her right foot responded to tickling (before she couldn't feel anything in her right leg and couldn't move it at all)
之前他德左頸靜脈窄化超過50%右頸靜脈窄化超過90%。術後他的腳對搔癢有反應了(之前完全沒有)

CCSVI手術後3星期-1

showing you the tickle response she now has ,
not only does she feel me tickling her leg pulls the foot away as a response.
she does't feel it as tickling yet but she does feel it she says.
雖然他感覺的不是癢,但是至少他有感覺到了

CCSVI手術後3星期-2

My sis gives me a hand , as you can see much better hand eye coordination.
他可以穩定的和我握手了~ 而且在視力(眼球不再顫抖)上有很大的進步

CCSVI手術後3星期-3

總整理:
three weeks after the operation , 2 days after the first check-up in hospital.

after 2,5 weeks both jugulars are still perfectly open , there were no defect's on the veins and blood can still flow freely as it should.
doctor told her she wont need the meds she got after the treatment.
next check-up is in october.

improvement's we noticed after 3 weeks.

-warm hands , and warmer feet. 手腳變溫暖
-she doesn't look as pale as she was b4 臉色變紅潤
-much improved mental state. (happy) 心裡狀態進步
-much improved vocal ability (can talk freely without having to search for words in her head) 說話變穩定,流利
-has normal bladder controll again (once every few hours , use to be once every few minutes , and she doesn't have to help push it out) 排尿變好了,可以控制(由數小時到數分鐘)
-dreams again.
-can feel it if something touches her right leg (right leg didn't have any feeling in it b4 the op)
-better hand-eye coordination.
-less spasms , and not as wild as b4.(she can't eat much more easy and can give someone a hand)痙欒變少了
-she doesn't feel cold all of the time.
- is more awake (less tired) 較少疲勞感

amazing how much she improved in just 3 short weeks.
3星期就有如此巨大的改變..
doctor said it'll take about 6-8 months to see how far she could improve.

恭喜凡妮紗!! 獲得重生!真為他感到高興!!

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