網誌文章搜尋建議

給多發性硬化症MS病友和親友的建議:
如要搜尋站內相關文章可多利用
"搜尋此網誌的文章內容"的功能,這樣就可以快速的找到你想要得資訊而不需要從第一篇開始看了.
有關CCSVI(靜脈血管窄化及手術的資訊)可在相關連結以及相關MS blog內

推薦頻道:Gimmy a break

2012年2月6日 星期一

有沒有不經由手術就能夠讓靜脈狹窄的問題不再惡化的方式?

大家新年快樂,好久不見,祝大家龍年攏健康。

這篇篇名很長,也是我想要去找到的答案

或許有,但也許不是一朝見效。我想,國際上已經有很多的研究證據指出,中樞靜脈循環不全會造成肢障或是加重MS的症狀。而氣球擴張術也已經證實了是一項足夠安全而且是解決最快的方式。
我們是多麼幸運,能夠有這樣突破性的進展,來幫助我們。

遺憾的是:可能會再窄回來。
支架,是一個能夠延長窄化時間的方式,也毋庸置疑。
但,能夠延長多久呢?

記得之前,北榮的胡醫師在他的臨床檢驗當中發現了用力呼氣能夠增加內頸靜脈內些許的血流量。
不久之前,在我住所附近的醫院中也有一位神經內科醫師:蘇醫師,在知道了我的過去的病史和義大利桑伯尼醫師的論文之後,並不會對這一個新的理論排斥或表示否定的看法。
反而,他教我一個呼吸的方式,(他用科學的角度來說明)讓我覺得有機會去打通轉折處可能阻塞的問題。

蘇:你以前是不是常閉氣?
我:游泳的時候
蘇:最好不要常常閉氣,而且不要吸飽氣之後閉氣,因為吸飽氣之後閉氣會造成胸腔的壓力增大,相對於腦部的血液可能會流不下來。而吐氣要吐到盡,盡可能的把所有的氣都吐出來,讓胸腔變小,造成胸腔的壓力變低,腦部的血液可能會因為壓力差而往下流。記得,吐盡氣後,閉氣再將腹部挺出,讓橫隔膜下降,讓肺部空間變大,造成胸腔壓力變小(類真空狀態)。造成壓力差,有機會讓腦血液往下流,你試試看。

在說完之後,我就立刻做了一次,我的感覺是:
在吐盡氣後,閉氣,腹部挺出之後沒多久(約5-8秒),麻麻的感覺由頭頂慢慢的往下,經過我的咽喉,到胸腔。
當下,很興奮,雖然我不知道麻的感覺是不是代表著血流,但是,很特別。

但是,不是每一次都有相同的感覺,也許是我阻塞的太過嚴重了吧。

這是一個很神奇的經驗,分享給大家,讓大家也試試看。
我後來發現,吸氣的時候,會有由胸腔往頭頂上麻的感覺,你們也可以試試看。

附上圖,讓大家試試看

註:請參考我網誌2011/7/23的文章

頸靜脈之自我擴張IJV Self-expasion

Keep breathing!
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6 則留言:

  1. 但是最近的研究对MS静脉狭窄理论提出质疑,看看这篇文章:
    A controversial theory arguing that multiple sclerosis (MS) is caused by narrowing of the veins that carry blood back to the heart from the brain and spine has failed to stand up to independent verification, argue the authors of a new study in Archives of Neurology.

    The theory that narrowed blood vessels, or chronic cerebrospinal venous insufficiency (CCVI), cause the vast majority of MS cases was proposed in 2009 by a team of Italian researchers led by Paolo Zamboni, MD. The idea is that the constriction of the vessels forces some of their blood back into the brain tissue, causing inflammation and leading to the balance and muscle problems seen in MS.

    The Italian team found that CCSVI was common in MS patients, but rare in people who do not have the disease. However, as the authors of the new study detail, three independent studies published since have found no such link between CCSVI and MS. (Critics have also alleged that the original Italian study was poorly designed and vulnerable to investigator bias.)

    Since Zamboni’s team published its findings, MS patients have sought out procedures to expand their blood vessels, and some doctors have obliged them. But the procedures, which usually involve inflating a balloon in the patient’s veins, bring along the possibility of bleeding and infection. The new study’s authors argue that, given the absence of compelling proof of the connection between CCSVI and MS, such procedures should not be pursued.

    Around the Web

    Are narrow blood vessels to blame in MS? [Reuters]

    Chronic Cerebrospinal Venous Insufficiency and Multiple Sclerosis (Abstract) [Archives of Neurology]

    Does the Evidence Support the Controversial CCSVI Theory of MS? [HCPLive]

    回覆刪除
    回覆
    1. Are narrow blood vessels to blame in MS? [Reuters]
      Thu Jul 14, 2011

      Chronic Cerebrospinal Venous Insufficiency and Multiple Sclerosis (Abstract) [Archives of Neurology]
      July 11, 2011

      Does the Evidence Support the Controversial CCSVI Theory of MS? [HCPLive]
      December 9, 2010

      的確,目前有支持的說法,也有不支持的說法,
      是否是原因似乎不太重要了。唯一可以確定的是:
      CCSVI只會加速肢障和病情的嚴重和不可回復性,CCSVI的存在就是威脅。必須加以注意和解決。而且由病人擴張後的反應就能夠證明血管窄化對於症狀的回復是一項有力的證據.

      2011年10月19日
      ECTRIMS 2011大會上也有針對CCSVI和MS關聯性的結論
      可以參考我之前的文章
      Meta分析支持 CCSVI和MS之間的關聯性

      刪除
  2. Are narrow blood vessels to blame in MS?

    Despite a few well-publicized studies and many hopeful patients waiting for treatment, there is no good evidence that multiple sclerosis, or MS, is caused by a blood vessel condition, a fresh look at the medical literature finds.

    That means patients with MS shouldn't have surgery to open veins that connect the brain and spinal cord to the heart, researchers say.

    "It's so appealing, the idea of a quick fix, of a surgical amelioration," Dr. Bridget Bagert, whose findings are published in the Archives of Neurology, told Reuters Health.

    But, she added, "It's really not the right thing to do if the problem isn't established as being real."

    MS occurs when the protective coating around nerve fibers begins to break down, slowing the brain's communication to the rest of the body. It's typically thought of as a disorder of the immune system and has no cure.

    In 2009, however, Italian researchers led by Dr. Paolo Zamboni linked MS to a blood vessel condition called chronic cerebrospinal venous insufficiency, or CCSVI. The theory is that veins bringing blood from the brain and spine back to the heart become too narrow, causing some of that blood to leak back into the brain tissue.

    Zamboni and his colleagues figured that might trigger inflammation, eventually leading to the balance and muscle problems seen in MS. Indeed, the Italian team's initial studies suggested that CCSVI is very common in MS patients and scarce in people without the disease.

    But three independent studies published since then haven't found a clear link, according to the new report.

    "That really casts a lot of doubt on to whether CCSVI exists at all, let alone whether or not it's the cause of MS," Bagert, from the Ochsner Clinic Foundation in New Orleans, told Reuters Health.

    After Zamboni's initial findings were published, hopeful MS patients started requesting blood-vessel opening procedures, and a few doctors became well known in the MS community for being willing to perform them.

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  3. To determine if a person has CCSVI, a picture of the veins is taken using ultrasound or another type of scan. If the blood vessels look too narrow, doctors may open them up by inflating a small balloon in the veins.

    Those procedures are typically used in people at risk of a heart attack, and they come with a risk of complications, including bleeding and infection.

    But researchers said it's hard for doctors to even know what they're looking for on blood vessel scans, and whether anything that looks strange could be playing a part in MS symptoms.

    "There's still considerable information and understanding that we don't have about this observation" on the role of CCSVI in MS, said Timothy Coetzee, chief research officer at the National Multiple Sclerosis Society in New York.

    "There's no question that there has been considerable ambiguity and questions about some of the studies that were 100 percent (in favor of the link) and some that showed nothing," he told Reuters Health.

    Bagert said there is also controversy over the methods used in the original Italian studies, which could have let potential investigator bias creep into the findings.

    Because of the inconsistency in past reports, the National Multiple Sclerosis Society has spent more than $2 million funding research on how often blood vessel abnormalities show up in people with MS.

    "Resolving this issue matters to a lot of people," said Coetzee, who was not involved in the new study.

    He added that speculation about possible causes of MS -- which has included theories about infections and vitamin D -- is nothing new.

    And as long as people with MS are well informed about the pros and cons of getting the procedure to open their blood vessels, he's not opposed to patients going ahead with the treatments for now.

    But Dr. Ellen Marder of the University of Texas Southwestern Medical Center at Dallas, another author on the new paper, said the data doesn't support that idea.

    "We don't think (CCSVI) is the cause of multiple sclerosis," she told Reuters Health. "We would not advise our patients to be tested for this or act on any recommendations based on this sort of testing."

    回覆刪除
  4. Despite a few well-publicized studies and many hopeful patients waiting for treatment, there is no good evidence that multiple sclerosis, or MS, is caused by a blood vessel condition, a fresh look at the medical literature finds.

    That means patients with MS shouldn't have surgery to open veins that connect the brain and spinal cord to the heart, researchers say.

    "It's so appealing, the idea of a quick fix, of a surgical amelioration," Dr. Bridget Bagert, whose findings are published in the Archives of Neurology, told Reuters Health.

    But, she added, "It's really not the right thing to do if the problem isn't established as being real."

    MS occurs when the protective coating around nerve fibers begins to break down, slowing the brain's communication to the rest of the body. It's typically thought of as a disorder of the immune system and has no cure.

    In 2009, however, Italian researchers led by Dr. Paolo Zamboni linked MS to a blood vessel condition called chronic cerebrospinal venous insufficiency, or CCSVI. The theory is that veins bringing blood from the brain and spine back to the heart become too narrow, causing some of that blood to leak back into the brain tissue.

    Zamboni and his colleagues figured that might trigger inflammation, eventually leading to the balance and muscle problems seen in MS. Indeed, the Italian team's initial studies suggested that CCSVI is very common in MS patients and scarce in people without the disease.

    But three independent studies published since then haven't found a clear link, according to the new report.

    "That really casts a lot of doubt on to whether CCSVI exists at all, let alone whether or not it's the cause of MS," Bagert, from the Ochsner Clinic Foundation in New Orleans, told Reuters Health.

    After Zamboni's initial findings were published, hopeful MS patients started requesting blood-vessel opening procedures, and a few doctors became well known in the MS community for being willing to perform them.

    回覆刪除
  5. Are narrow blood vessels to blame in MS?

    Despite a few well-publicized studies and many hopeful patients waiting for treatment, there is no good evidence that multiple sclerosis, or MS, is caused by a blood vessel condition, a fresh look at the medical literature finds.

    That means patients with MS shouldn't have surgery to open veins that connect the brain and spinal cord to the heart, researchers say.

    "It's so appealing, the idea of a quick fix, of a surgical amelioration," Dr. Bridget Bagert, whose findings are published in the Archives of Neurology, told Reuters Health.

    But, she added, "It's really not the right thing to do if the problem isn't established as being real."

    MS occurs when the protective coating around nerve fibers begins to break down, slowing the brain's communication to the rest of the body. It's typically thought of as a disorder of the immune system and has no cure.

    In 2009, however, Italian researchers led by Dr. Paolo Zamboni linked MS to a blood vessel condition called chronic cerebrospinal venous insufficiency, or CCSVI. The theory is that veins bringing blood from the brain and spine back to the heart become too narrow, causing some of that blood to leak back into the brain tissue.

    Zamboni and his colleagues figured that might trigger inflammation, eventually leading to the balance and muscle problems seen in MS. Indeed, the Italian team's initial studies suggested that CCSVI is very common in MS patients and scarce in people without the disease.

    But three independent studies published since then haven't found a clear link, according to the new report.

    "That really casts a lot of doubt on to whether CCSVI exists at all, let alone whether or not it's the cause of MS," Bagert, from the Ochsner Clinic Foundation in New Orleans, told Reuters Health.

    After Zamboni's initial findings were published, hopeful MS patients started requesting blood-vessel opening procedures, and a few doctors became well known in the MS community for being willing to perform them.

    回覆刪除

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